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  • Embracing Holland Trailer
    2020/03/03

    Hi, I'm Angie Auldridge, and I'm Megan Barrett, Welcome to Embracing Holland. 

    When Meg and I received each of our children's diagnoses, we found ourselves in the land of worry, grief, and unknown, but after a while, when we realized that this excursion was not temporary we settled in and began to see life in a new way.

    As a special needs rite of passage we were each handed the Welcome to Holland poem with the intent of showing us that this place is not so bad and in fact can be really beautiful.  

    Some days are dumpster fires and other days are filled with unexpected joy. 

    Regardless of the cause of your detour, the struggle to embrace this new life is universal.

    Our hope is to share with you how ordinary people on this journey have unpacked their bags and faced adversity with creativity, passion, and determination.

    We'll bring you interviews, field trips, cool stuff we find along the way and glimpses into the reality of raising children with differing needs. 


    Join us as we embrace Holland!



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    1 分
  • Maiden Voyage
    2020/03/06

    Join us as we embark on the Maiden Voyage of Embracing Holland. Before we dive into sharing interviews and topical episodes we thought we would start the journey with an introduction to who we are and how we landed here.


    Angie is the mother of three children, a college disability advisor, and wife to her high school sweetheart, Isaac (Ike). Their middle child, Mark (nicknamed Mighty), was diagnosed with autism as well as a rare genetic mutation, SCN2A in 2015. Since this time she has spent the last five years volunteering on multiple community groups and boards with the hope of improving the quality of life and services for people with disabilities. Angie's passionate about creating community, sharing stories and supporting others in the face of fear and uncertainly. 

      

    During the time spent driving her son to his medical and therapy appointments, she began listening to podcasts, shows about autism, genetic research, parenting, true crime and everything in between. She fell in love with listening to others share their stories and wished that someday she could do some storytelling of her own in order to provide encouragement and hope to those who are walking alone in the early dark days of a new diagnosis.


    On a trip to a special education law conference, she shared her interest to do a podcast with her friend Meg, and very soon after they purchased sound equipment and began practicing recording in Angie's dining room. The goal was to provide a glimpse into the world of parents turning the corner of grief and loss to possibility and ingenuity. 


    So they began searching for a podcast name and settled on Embracing Holland; a play on the name of the "Welcome to Holland" poem often given to parents of a newly diagnosed child. https://www.emilyperlkingsley.com/welcome-to-holland


    As part of Angie's travels, she's met a number of advocates, bloggers, small business owners, authors, speakers, and change-makers all determined to create resources that did not previously exist, advocate for change and use their voices to make a difference in the world, specifically for people with disabilities. And so they wanted to share their stories with you. 


    You can find Angie on Facebook, Instagram, Pinterest and on her blog, www.mightyandthebean.com. 


    Find Embracing Holland on Facebook, Instagram, Twitter, and Pinterest. If you have an idea for a show, interview or question, please email us at hello@embracingholland.com 

    The TED Talk mentioned,
    https://podcasts.apple.com/us/podcast/lies-our-culture-tells-us-about-what-matters-better/id160904630?i=1000440683496

    If you are encouraged by our podcast please consider leaving a review on iTunes here!

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    57 分
  • Ausome Advocate and Author with Catherine Hughes
    2020/03/08
    Meet Catherine Hughes.Hailing from southeast of Pittsburgh, PA in a small town recently dubbed as "the most boring town in Pennsylvania," Catherine Hughes is the daughter of two English professors. She is a passionate advocate, innovative storyteller, and community strategist.

    For over 16 years, she has provided comprehensive support and passionate advocacy to individuals and self-advocates, their families, and surrounding natural supports throughout their communities. She considers herself a servant leader, one who cultivates, develops and maintains relationships with grace and grit in order to create, enhance, and promote services and programs that transform lives. On a personal level, her calling (not a career) allows her to give back some of what has so graciously been given to her family. She proudly serves as the Director of Family Support and Community Engagement at Achieving True Self servicing families across the Northeastern U.S.

    Catherine is a best-selling author and editor for multiple books including It's Going to be AUlright: Testimonies from Ausome Women Raising Ausome People, Made for More - Mental Health Edition and You Are Not Alone: Stories, Resources and Hope from Autism Moms. She is set to release several more works in 2020. Catherine manages a blog and social media platforms as The Caffeinated Advocate.

    If you were wondering about her caffeine of choice, she's a Dunkin' girl.

    Living with her in that "boring" (ok, it's not actually boring) town but not so boring household are Mama Betty, Christian, and their pets Callie, Cookie, Candie, Hannah, Maddie and Raven the Cats and the one and only Abby Dog.

    www.thecaffeinatedadvocate.com
    Books by Catherine Hughes: amazon.com/author/hughescatherineFacebook: @caffeinatedadvocateInstagram: @caffeinatedadvocateLinkedIn: @catherineahughes

    Advocate, Best-Selling Author, Editor, Speaker, and Trainer
    Founder of The Caffeinated Advocate
    Director of Family Support and Community Engagement, Achieving True Self
    Autism Moms Are Beautiful Advisory Board
    The ABA in PA Initiative Board Member




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    50 分
  • Life Hacks for Special Needs Parents
    2020/03/21

    Meg & Angie share their special needs lifehacks

    • Surviving medical & blood work appts
    • Navigating insurance issues
    • Money-saving ideas
    • Making mealtime & grocery shopping easier
    • Organizing & homes for things
    • Taking meds
    • Preparing for new things
    • Elopement & wandering
    • Obtaining medical equipment & fencing
    • Technology to keep children safe
    • Potty challenges
    • And much more! 

    Tune in and check out our show notes!

    Comfort Hold

    Different holds for supporting a child during a pediatric procedure

    https://www.nationwidechildrens.org/family-resources-education/health-wellness-and-safety-resources/helping-hands/comfort-hold-techniques  

     Google Calendar for medical tracking

    Each child has a separate calendar, but you could create calendars based on whatever you want to track.  

    https://lifehacker.com/track-medical-conditions-with-google-calendar-168218  

     TOILET TRAINING

    The best videos ever -  https://www.actcommunity.ca/education/videos/toilet-training-for-everyone?fbclid=IwAR1dIvCp_0fFIcADBbp-FZ7OH2BLZT11HfT6PJonayIVRKcieUvYzMI58gc 

     ACCESSIBLE PARKING

    Link for guidelines per state - https://autismawareness.com/parking-permits-for-autism/

     WANDERING/ELOPEMENT

    Sleep Safe Bed - https://sleepsafebed.com/?matchtype=e&network=g&device=c&keyword=sleep%20safe%20bed&campaign=651802980&adgroup=30470176262&gclid=Cj0KCQiAkePyBRCEARIsAMy5SctAEsnDcZ7NUw61Ve4xokeMg1OhpUCJQqFpPfmZuN__llNGNtmtCcIaArVOEALw_wcB

     Door sensor by Smart Things

    https://www.smartthings.com/products/-/filter/categories/sensors  

     Fencing - Apply for grants 

    https://www.modestneeds.org/index.asp 

     Locator - JioBit - Real-Time GPA tracker - https://www.modestneeds.org/index.asp

     Project Lifesaver - https://projectlifesaver.org/

     DIY Swing

    Borrow option from Equipment Connection - https://www.equipforchildren.org/ 

    FOOD

    Prepdish - fits special diets - https://prepdish.com/

    VIDEO SOCIAL STORIES

    https://www.lcsc.org/cms/lib6/mn01001004/centricity/domain/21/socialstories.pdf

    PICTURE DAY

    Download a YouTube video to your phone

    https://www.engadget.com/2014/05/28/how-to-download-youtube-videos-to-your-iphone/ 


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    1 時間 11 分
  • Changing Spaces and Creating Hope with Christina Abernethy
    2020/03/23

    Christina is a dedicated wife, mother of three, and passionate advocate for people impacted by disabilities. She has coordinated events to fund research, supports and service dogs for families. She has served on local committees, coached an adaptive cheerleading team, and won awards for successful fundraising endeavors including those for “Team Bubba,” honoring her son with autism. She is the founder of Love, Hope and Autism and is proud to be the coordinator for Changing Spaces Pennsylvania, a movement to build accessible restrooms with powered height adjustable adult sized changing tables across communities to promote inclusion. She is working with legislators to pass a bill in Pennsylvania that would require such facilities in hospitals, airports, museums, rest stops, malls and more. She also works as a Family Support and Community Engagement Specialist at Achieving True Self, supporting families like hers. Christina is committed to spreading a message of heightened awareness and acceptance of differences, ultimately inspiring hope. For her efforts, she won the ACHIEVA Award Of Excellence for Family Support in 2018 and in 2019 was awarded a medal by the Autism Connection of Pennsylvania. She is a two-time best selling coauthor, most recently including “You Are Not Alone: Stories, Resources and Hope From Autism Moms;” a book that is filled with inspiring stories, helpful resources, and ultimately hope for families to let them know that they are not alone in their journey and that they too were made for more.

    Top 5 Tips for Taking on an IEP with Confidence
    https://www.facebook.com/watch/?v=329167527805115

    You Are Not Alone: Stories, Resources and Hope From Autism Moms
    https://www.amazon.com/You-Are-Not-Alone-Resources/dp/1701275155?fbclid=IwAR3IWY6Z6ngb3NsMHq_Qu8vYXgYEgG-oNBDeUe8ESLltBSn233AJSFAr0IE

    Tips and Tricks that helped us during the flu
    https://www.facebook.com/LoveHopeandAutism/videos/2599947736900132/




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    23 分
  • Families That Advocate Together Stay Together with Laura Hatcher
    2020/04/05

    Laura is Simon’s mom and the Director of Communications for Little Lobbyists.


    Laura believes that, regardless of health or ability, all people have the right to life, liberty, and the pursuit of happiness. She also believes that every person has gifts to share, celebrate, and use to make our world more beautiful.

    Laura is a graphic designer, small business owner, and adjunct professor. She believes in the power of great design for great organizations and specializes in communication for education, health care, and the arts. She loves being in the classroom helping creative people turn their passion into their profession.

    When she isn’t creating or teaching design, Laura works toward making the world a more beautiful place by volunteering on various board committees that support arts in education and the inclusion and celebration of people with disabilities. She loves being a mom to both her amazing kids, does a lot of yoga, bakes impressive cakes, and really appreciates a nice manicure.

    Laura can be reached at laura@littlelobbyists.org

    https://littlelobbyists.org/ 

    https://cnd.com.ua/en/products/shellac-peacock-plume


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    40 分
  • Pandemic Survival
    2020/04/14

    This week on Embracing Holland we chat about all things stay at home orders, and include resources that may be helpful as you hunker down at home.

    *Handling working & being home with kids⁣
    *Schedules⁣
    *Navigating children’s anxiety⁣
    *Occupying littles⁣
    *Guarding our mental health⁣
    *Home haircuts⁣

    ...and more! ⁣

    Mayim Bialik - Some Thoughts From Home video -  https://www.youtube.com/watch?v=aUnWJSkHYDM  

     

    Kendra Adachi - The Lazy Genius - http://www.thelazygeniuscollective.com/

    https://www.youtube.com/channel/UCJDxz7WBmjSpYu4ogFbgxIQ 

     

    Cape May Zoo Talks - https://www.youtube.com/channel/UC7NH6m3PG5s6FWn0RRXs1Sw

     

    San Diego Live Cams

    https://zoo.sandiegozoo.org/live-cams 

    *Also recommend the little mini-series Penguin Beach -  https://zoo.sandiegozoo.org/videos

     

    Calm Chocolate - https://www.gooddaychocolate.com/products/calm?variant=6932889698369

     

    Creekside Anxiety Comfort for Children - https://creeksidenaturals.com/product/anxiety-comfort/

     

    Joy-Filled by Happy Healthy Hippy - https://happyhealthyhippieco.com/products/joy-filled

     

     Parasympathetic Essential Oil by Vibrant Blue Oils

    https://vibrantblueoils.com/product/parasympathetic-essential-oil/  

     

    Meditation Quickie - https://avivaromm.com/quick-meditation/

    How to Perform 4, 7, 8 breathing - https://youtu.be/YRPh_GaiL8s

    Dr. Elisa Song - https://healthykidshappykids.com/2020/03/28/gratitude-coronavirus-resilience/

     

    Autism Homeschool Helper - https://theautismhelper.com/emergency-home-school-kit/

    Jessa Seewald Little Boy Haircut Tutorial - https://www.youtube.com/watch?v=NnvaPAoEG1o  

    Curly Cut Tutorial - https://www.youtube.com/watch?v=ORv2hInGB0Y

    Men’s Cut Tutorial - https://www.youtube.com/watch?v=RJk2rHpocP0

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    44 分
  • An Alternative Approach with Diana Wingate-Gaiser
    2020/04/20

     Diana is the mother of two boys on the autism spectrum.  She has a vested interest in homeopath and alternative therapy for treating symptoms of autism and the environmental toxicity link to autism including vaccines. She volunteered extensively for six years with Autism Speaks raising funds for the annual walk, recruiting legislative support, spreading awareness within the community and was the District Area Chair for their grassroots advocacy.  Diana has spent countless hours advocating, emailing, calling and meeting with legislatures to help mandate insurance coverage in Maryland for children and adults with an autism diagnosis.  This includes meeting with the Autism Technical Advisory Group at The Department of Mental Health and Hygiene and The Maryland Insurance Commission.  This goal was accomplished through the collaboration of efforts with parents and stakeholders in the community including Pathfinders for Autism. The revised Habilitative Mandate went into effect April 17, 2014. Most recently Diana worked with local lawmakers to pass two very important pieces of legislation; ensuring P.A.N.D.A.S. was covered by insurance and ensuring pediatrics have access to medical marijuana in public and non-public school settings. Diana has 19 years of professional and financial experience with Johns Hopkins University. She is a warrior for her own kids and a dedicated advocate in the local and national community. 

    Links from the show

    Whole Plant Access for Autism - Facebook Group

    Maryland Medical Cannabis Commission 

    Realm of Caring - Cannabis Education Research and Support

    The Rogue Map

    Rogue Recovery Facebook Group 



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    48 分