• Ramblin' Rare by ACD

  • 著者： Randy Allen
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Ramblin' Rare by ACD

著者： Randy Allen
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  • A podcast about rare diseases, the families they impact and scientists aiming to change their world through their work. Sponsored by the Association for Creatine Deficiencies. Learn more @ CreatineInfo.org
    ACD 2022
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あらすじ・解説

A podcast about rare diseases, the families they impact and scientists aiming to change their world through their work. Sponsored by the Association for Creatine Deficiencies. Learn more @ CreatineInfo.org
ACD 2022
代替医療・補完医療 衛生・健康的な生活 身体的病い・疾患
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エピソード
  • Siblings!

    Siblings!
    2022/09/02

    Opportunities, Challenges and Strategies for Siblings of Rare Disease Children

    On this episode, Randy and Nathan will discuss siblings of our rare disease kiddos.

    Three main takeaways..

    1. Siblings will naturally grow into their roles as an exceptional needs brothers or sisters, however that does not remove our responsibility as parents to help equip them for the task.

    2. Rare disease siblings seem to mature quicker, gain more perspective earlier in life but we as parents need to go out of our way to ensure that they can still be kids and have typical childhood experiences.

    3. Siblings will be siblings - they will bother one another regardless of rare disorder or not! Allow our neuro-typical siblings to be real, get annoyed, upset, etc.

    www.creatineinfo.org
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    35 分
  • Travel Tips & Making Memories

    Travel Tips & Making Memories
    2022/06/14

    Traveling this summer?

    Tune in for some tips & strategies to help create some memories with your family!
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    22 分

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