Amplifying the Patient Journey

著者: Practical Neurology
  • サマリー

  • The heart of clinical practice is the patient. In this series, we speak with both providers and patients about the clinical journey with a neurologic condition, and what recent advances mean for patients, their providers, and caregivers.
    2024 Bryn Mawr Communications LLC
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あらすじ・解説

The heart of clinical practice is the patient. In this series, we speak with both providers and patients about the clinical journey with a neurologic condition, and what recent advances mean for patients, their providers, and caregivers.
2024 Bryn Mawr Communications LLC
エピソード
  • Young-Onset ALS: Diagnosis and Research
    2024/11/08
    In this episode, Gwen Petersen discusses her long journey to receiving an ALS diagnosis at age 32, her contributions to a Cytokinetics book project, and the importance of clinical trial participation. We are also joined by Merit Cudkowicz, MD, MSc, Head of the Department of Neurology, Chief of Neurology, and Director of the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital in Boston, MA who discusses the PLATFORM-ALS trial and the drugs currently in the clinical research and development pipeline.
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    20 分
  • Rett Syndrome: Magnolia and Her Family's Experience.
    2024/10/31
    AJ Tesler shares the story of his daughter, Magnolia, who is living with Rett syndrome. As a parent and caregiver, AJ provides his perspective throughout the diagnostic and therapeutic journey for Rett syndrome and is joined by Rett syndrome expert Carey Fu, MD, Pediatric Neurologist at Vanderbilt University Medical Center in Nashville, TN.
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    23 分
  • PD GENEration and Barriers to Parkinson Diagnosis - Part 2
    2024/08/23
    Richard Huckabee is a patient living with Parkinson disease and a Parkinson’s Foundation "Aware in Care" ambassador and research advocate. Mr. Huckabee is enrolled in the PD GENEration study, a national initiative offering no-cost genetic testing and counseling for people with Parkinson disease, and he discusses some of the barriers he faced in receiving a diagnosis of Parkinson disease.
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    18 分

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