• An interview with Sarah Bigham Author and Educator on Access and Chronic Illness in Schools, College, and Work

  • 2021/02/12
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An interview with Sarah Bigham Author and Educator on Access and Chronic Illness in Schools, College, and Work

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  • DISORDER INFOWhat is your disorder? *So many! Mast cell activation issue, interstitial cystitis, vulvodynia, fibromyalgia - to name a fewAt what age did your disorder become a daily issue? *43Who were you before your illness became debilitating? *Such a great question. Who was I? I was a full-time college professor.What would you do if you were not dealing with your disorder and/or disability? *This is hard to answer because, on one hand, I wish I could go back to my full-time working life, but on the other hand, my illnesses have opened up other worlds for me with writing and creativity. What would you like people to know about your daily life? *It is much harder than people without chronic illness may imagine. I put on a good show and there are many positives in my life, but it is a struggle. What would make living and moving in the world easier for you? *More compassion, understanding, and knowledge - from medical providers and the general community.Do you have any life hacks? *Naps! Do something creative! Meditate!What kind of support do you get from family or friends? *I am lucky - I have a great circle of support. Many do not. Have you ever had someone, or a medical professional, not believe you have an invisible illness because of your appearance and if so are there any examples that stand out? *One doctor suggested that the symptoms I had could be explained by psychiatric issues. I highly doubt that a male-identifying person would have been told the same thing. Another care provider seemed only concerned about my weight, as if that was the cause of all my issues. I have to return once a year for ongoing care from that second person, and I dread it every time, but I get the medical equipment I require as a result. How has your chronic illness affected your relationships? *Some have been made stronger. Others have lapsed.Is there anything you are afraid to tell people in your life? *At the height of my physical pain, it was hard to discuss how I was feeling - physically and emotionally.What is your best coping mechanism? *Naps! Reading! Podcasts like this one!What are you the most concerned about and the most hopeful for in the future? *I worry that those with chronic illness can be even more isolated during the pandemic. I am hopeful that perhaps chronic illness will get more REAL attention as COVID patients are reporting (unfortunately) long-last side effects. Is there anything you want to make sure we talk about during the interview? Like an organization you want to promote or something specific that you deal with.I'd like to talk about my first book that came out this spring. I consider it a major life accomplishment, even more because I did it while dealing with chronic illness.What makes you energized or enthusiastic? What drains you?Energized = connection with others. Draining = dealing with bigots, people who have not used the pandemic to focus on what is essential.Any favorite books or shows?My wife and I missed Parks & Recreation when it was on network TV, but are really enjoying it now through Netflix!What is the hardest and/or best lesson your condition has taught you?I am stronger than I ever thought possible. What is the best purchase under $100 that helped your lifeYou are Not Your Pain - book with an accompanying CD that provides guided meditations for those with chronic pain, written by those with chronic pain - it helped me when nothing else yet did.Any questions you think we should add to this list?Who has been the most helpful to you? Least helpful? And why? What is one thing you do every day, without fail. (What is one thing you WISH you did every day, without fail.) Other than sleep, what do you spend the most time doing every day? What is your favorite EASY recipe that you can make without exhausting yourself? What are you reading right now? What is the best medical advice you ever got? The worst? (I will stop with my stream of consciousness now or I could be here all day!) :)
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DISORDER INFOWhat is your disorder? *So many! Mast cell activation issue, interstitial cystitis, vulvodynia, fibromyalgia - to name a fewAt what age did your disorder become a daily issue? *43Who were you before your illness became debilitating? *Such a great question. Who was I? I was a full-time college professor.What would you do if you were not dealing with your disorder and/or disability? *This is hard to answer because, on one hand, I wish I could go back to my full-time working life, but on the other hand, my illnesses have opened up other worlds for me with writing and creativity. What would you like people to know about your daily life? *It is much harder than people without chronic illness may imagine. I put on a good show and there are many positives in my life, but it is a struggle. What would make living and moving in the world easier for you? *More compassion, understanding, and knowledge - from medical providers and the general community.Do you have any life hacks? *Naps! Do something creative! Meditate!What kind of support do you get from family or friends? *I am lucky - I have a great circle of support. Many do not. Have you ever had someone, or a medical professional, not believe you have an invisible illness because of your appearance and if so are there any examples that stand out? *One doctor suggested that the symptoms I had could be explained by psychiatric issues. I highly doubt that a male-identifying person would have been told the same thing. Another care provider seemed only concerned about my weight, as if that was the cause of all my issues. I have to return once a year for ongoing care from that second person, and I dread it every time, but I get the medical equipment I require as a result. How has your chronic illness affected your relationships? *Some have been made stronger. Others have lapsed.Is there anything you are afraid to tell people in your life? *At the height of my physical pain, it was hard to discuss how I was feeling - physically and emotionally.What is your best coping mechanism? *Naps! Reading! Podcasts like this one!What are you the most concerned about and the most hopeful for in the future? *I worry that those with chronic illness can be even more isolated during the pandemic. I am hopeful that perhaps chronic illness will get more REAL attention as COVID patients are reporting (unfortunately) long-last side effects. Is there anything you want to make sure we talk about during the interview? Like an organization you want to promote or something specific that you deal with.I'd like to talk about my first book that came out this spring. I consider it a major life accomplishment, even more because I did it while dealing with chronic illness.What makes you energized or enthusiastic? What drains you?Energized = connection with others. Draining = dealing with bigots, people who have not used the pandemic to focus on what is essential.Any favorite books or shows?My wife and I missed Parks & Recreation when it was on network TV, but are really enjoying it now through Netflix!What is the hardest and/or best lesson your condition has taught you?I am stronger than I ever thought possible. What is the best purchase under $100 that helped your lifeYou are Not Your Pain - book with an accompanying CD that provides guided meditations for those with chronic pain, written by those with chronic pain - it helped me when nothing else yet did.Any questions you think we should add to this list?Who has been the most helpful to you? Least helpful? And why? What is one thing you do every day, without fail. (What is one thing you WISH you did every day, without fail.) Other than sleep, what do you spend the most time doing every day? What is your favorite EASY recipe that you can make without exhausting yourself? What are you reading right now? What is the best medical advice you ever got? The worst? (I will stop with my stream of consciousness now or I could be here all day!) :)
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