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  • Episode 55: UCSF Benioff Children's Hospital-Axis Advocacy

    Episode 55: UCSF Benioff Children's Hospital-Axis Advocacy
    2023/07/16

    Some of our board members traveled to the UCSF Benioff Children's Hospital in Oakland, California. They were one of the first sickle cell clinics in the U.S. and are celebrating their 50th anniversary. 
    Clinical trials are an essential part of their mission and provide opportunities for patients to benefit from the latest research. And that’s what we’re talking about today. 
    We spoke with doctors Mark Walters and Marsha Treadwell, nurses, social workers, support staff, and transplant patients and donors, including siblings Christelle & Karl Salomon. Karl provided his sister Christelle, who was born with SCD, life changing bone marrow. 
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    1 時間 2 分
  • Episode 54: Teonna Woolford-Sickle Cell Reproductive Education Directive (SC RED)

    Episode 54: Teonna Woolford-Sickle Cell Reproductive Education Directive (SC RED)
    2021/07/21

    We are joined by Teonna Woolford, the Co-Founder + Chief Executive Officer of Sickle Cell Reproductive Education Directive (SC RED). https://sicklecellred.org/
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    43 分
  • Episode 53: Liz Helms-California Chronic Care Coalition

    Episode 53: Liz Helms-California Chronic Care Coalition
    2021/07/05

    We are joined by Liz Helms, President and CEO of the California Chronic Care Coalition, an alliance of non-profit, social consumer and provider organizations united to improve the health of Californians with chronic conditions or diseases.
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    48 分
  • Episode 52: Sickle Cell-Stem Cell Update April 2021

    Episode 52: Sickle Cell-Stem Cell Update April 2021
    2021/04/06
    We are joined by doctors Donald Kohn of UCLA and Mark Walters of UCSF to discuss Stem Cell Research and Sickle Cell Disease.
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    32 分
  • Moms' Talk #1

    Moms' Talk #1
    2020/11/14
    Mothers of children with Sickle Cell disease, Adrienne Shapiro and Francesca Valentine, discuss when they received news of their child's diagnosis and how it impacted their families' lives.
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    33 分
  • Axis Advocacy Update October 2020

    Axis Advocacy Update October 2020
    2020/10/26
    Axis Advocacy Founder Adrienne Shapiro discusses the 1st 5 years of the organization, and embarks on the next five years as a grassroots organization serving the Sickle Cell Disease community.
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    20 分
  • Juneteenth SCD Art & Film Festival

    Juneteenth SCD Art & Film Festival
    2019/06/02
    We are joined by Casey Gibson and Shabreon Howard of the 1st annual Sickle Cell Disease Art & Film Festival, taking place on the Axis Advocacy campus in Pasadena, Ca on June 19, 2019.
    Tickets are free but you need to have a ticket. https://www.eventbrite.com/e/scd-art-film-festival-tickets-59239860016?aff=efbneb&fbclid=IwAR0bwofPJBZjRNVnyy5RuTYyJr2tpf9vx36xfAMLF4eQESDPZjCcEK_qbCk
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    54 分
  • J.Snow/SCD Art & Film Celebration

    J.Snow/SCD Art & Film Celebration
    2019/04/07
    We are joined by Jared Snow (aka J.Snow) who is an actor, writer, and stand up comedian hailing from Compton California. He began producing comedy sketches on YouTube– and over thirty million views and several years he's working on a new film called Flawed.

    We're also talking about the 1st Annual SCD Art & Film Celebration on June 19th at the Axis Advocacy Campus.

    https://www.everybodygotflaws.com
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    54 分