Today on Beyond the Bleeds, John and I welcome Peggy Meyer, an extraordinary nurse and co-founder of the Hemophilia Outreach Center (HOC) in Green Bay, Wisconsin. We delve into Peggy's inspirational journey, the founding of HOC, and her undying commitment to helping those with bleeding disorders. Peggy shares incredible anecdotes from her decades-long career and discusses the evolution of hemophilia care, from grassroots efforts to pioneering advancements like gene therapy.

Peggy Meyer, R.N., is a trailblazer in hemophilia care. With an impressive career spanning multiple decades, Peggy co-founded the Hemophilia Outreach Center, transforming it from a small, volunteer-driven initiative into a comprehensive care facility. Peggy’s dedication has positively impacted countless lives, making her an enduring figure in the hemophilia community.

"It's been a patient-driven clinic from the very beginning, and it still is." ~ Peggy Meyer

Today on Beyond the Bleeds:

· Peggy and Audrey Noskowicz began training families in Green Bay to self-infuse IVs at home.

· Both nurses operated initially from Peggy's home, emphasizing their mission's informal yet dedicated nature.

· The first clinic space was a small corner in a St. Vincent lobby, which expanded as demand for their services grew.

· They partnered with local doctors and worked with the Great Lakes Hemophilia Foundation to build their operations.

· Peggy went without a salary for four months to ensure the clinic's financial stability.

· HOC's growth eventually led to its gaining a suite at Bellin Hospital, where it continued to expand its services.

· Gene therapy, which was envisioned decades ago, has become a reality at HOC, marking a significant milestone.

· Since its humble beginnings, HOC has grown into a comprehensive care center, offering outreach clinics and a wide range of services.

Resources Mentioned:

Great Lakes Hemophilia Foundation

https://www.glhf.org

Bellin Health:

https://www.bellin.org

Hemophilia Outreach Center:

https://www.hocgb.org

Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder?

Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we bring you real stories, expert insights, and heartfelt conversations designed to help you navigate life Beyond the Bleeds.

Apple | Spotify | iHeart | Amazon Music | Stitcher | Pandora | Deezer

Don’t miss out on the Hemophilia Outreach Center’s Winter Education Program on December 7th, 2024, at the Oneida Hotel in Green Bay!

With inspiring presentations, fun activities for kids, and a special visit from Santa, it’s an event you won’t want to miss!

Visit:

https://www.hemophiliaoutreach.org/events

to register today.

Today on Beyond the Bleeds, John and Heather welcome Jamison Buxton, CEO of the Hemophilia Outreach Center in Green Bay, Wisconsin, to discuss his journey from a parent of a child with hemophilia to leading an organization dedicated to supporting those with bleeding disorders. Jamison shares his personal experiences, the center's growth, and the importance of community and comprehensive care for individuals and families managing hemophilia.

Jamison Buxton became deeply involved in the hemophilia community after his son was diagnosed with hemophilia B in 2003. His commitment led him to join the board of directors in 2012, and by 2016, he assumed the CEO role. Under his leadership, the center has expanded significantly, serving an even larger patient population and providing crucial support and resources to those affected by bleeding disorders.

"I wanted to ensure that patients and families had the same care and services that I was offered in raising my son." ~ Jamison Buxton

Today on Beyond the Bleeds:

· Early involvement with a hemophilia treatment center can provide essential information and support for navigating the challenges of a bleeding disorder.

· It is important for parents to document everything to explain their child's condition and any bruises or injuries that may appear.

· Opening a new clinic in Wausau provides patients with local access to care, reducing the need for long-distance travel.

· The expansion of the Green Bay clinic was driven by a need to accommodate a growing patient population.

· Strategic planning with the board of directors ensures that the center meets future demands and continues providing high-quality care.

· Experiencing the challenges of having a child with a bleeding disorder gives Jameson a personal perspective that influences how he leads the organization.

· Having a mix of employees with and without personal connections to bleeding disorders enriches the team and enhances patient care.

· Finding a hemophilia treatment center near you is crucial for accessing specialized care and support.

Guest Contact Information:

Jamison Buxton: https://hemophiliaoutreach.org/contact-us

Resources Mentioned:

Hemophilia Outreach Center: https://hemophiliaoutreach.org

CDC Hemophilia Treatment Center Directory: https://www.cdc.gov/ncbddd/hemophilia/HTC.html

Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder?

Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we bring you real stories, expert insights, and heartfelt conversations designed to help you navigate life Beyond the Bleeds.

Apple | Spotify | iHeart | Amazon Music | Stitcher | Pandora | Deezer

Don’t miss out on the Hemophilia Outreach Center’s Winter Education Program on December 7th, 2024, at the Oneida Hotel in Green Bay!

With inspiring presentations, fun activities for kids, and a special visit from Santa, it’s an event you won’t want to miss!

Visit:

https://www.hemophiliaoutreach.org/events

to register today.

Today on Beyond the Bleeds, Heather and John welcome Jill Larson, a nutritionist with the comprehensive care team at the Hemophilia Outreach Center in Green Bay. In this episode, Jill shares her invaluable insights on why nutrition is critical for those in the bleeding disorders community. From the significance of weight-based medication to practical tips on maintaining a nutritious diet on a budget, Jill provides a wealth of knowledge to improve overall health and wellness.

Jill Larson is a seasoned nutrition expert passionate about science and teaching. With a background in biochemistry and a degree in nutrition sciences, Jill brings evidence-based practices to her role at the Hemophilia Outreach Center. Her work focuses on cardiovascular health, inflammation reduction, microbiome health, and practical strategies for eating well without breaking the bank.

“Beans and lentils, it diversifies the proteins, provides some nutrients, including iron, that our patients would be interested in, and fiber, which many of us are just woefully low on.”

– Jill Larson

Today on Beyond the Bleeds:

• Diversifying protein sources with beans and lentils is important for better nutrition and budgeting.
• Frozen vegetables can sometimes be healthier than fresh ones due to their peak ripeness preservation.
• Buying raw produce like potatoes in bulk instead of processed snacks is cost-effective.
• Nutritional practices can significantly reduce the risk of cardiovascular disease and other chronic illnesses.
• The role of meal planning in reducing food waste and improving dietary habits.
• Strategies for stretching your food budget include buying in bulk and freezing various foods.
• The benefits and safety tips of using nutritional supplements and herbal products.
• Insight into the appropriate use and selection of vitamins and dietary supplements, especially in the bleeding disorders community.

Guest Contact Information:

Jill Larson: http://hemophiliaoutreach.org/services/nutritionist

Resources Mentioned:

Environmental Working Group: https://www.ewg.org

National Institutes of Health: https://www.nih.gov

Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder?

Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we bring you real stories, expert insights, and heartfelt conversations designed to help you navigate life Beyond the Bleeds.

Apple | Spotify | iHeart | Amazon Music | Stitcher | Pandora | Deezer

Don’t miss out on the Hemophilia Outreach Center’s Winter Education Program on December 7th, 2024, at the Oneida Hotel in Green Bay!

With inspiring presentations, fun activities for kids, and a special visit from Santa, it’s an event you won’t want to miss!

Visit: https://www.hemophiliaoutreach.org/events to register today.

The post Beans, Lentils, and Beyond: Essential Nutrition Insights for Hemophilia Patients appeared first on Hemophilia Outreach Center.