In this episode, Brain & Life Podcast co-host Dr. Katy Peters answers your questions. She discusses managing the holidays with a neurologic condition, how weather can affect your brain, self-advocacy, and more. Thank you for submitting your questions and sharing your comments about the Brain & Life Podcast!

We invite you to participate in our listener survey! By participating in the brief survey, you will have the opportunity to enter your name and email address for a chance to win one of five $100 Amazon gift cards.

Unfortunately, for this episode we had a few audio issues that could not be fixed, but we are excited to bring you this discussion and answer your questions

Additional Resources

Six Ways to Maximize Joy and Make Life Easier Around the Holidays

Apps and Self-Advocacy with Roon’s Dr. Rohan Ramakrishna

Anyone Can Become a Patient Advocate

Country Singer Drake White’s Rare Brain Condition and Healing Journey

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Have a question or want to hear a topic featured on the Brain & Life Podcast?

· Record a voicemail at 612-928-6206

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Social Media:

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life podcast, Dr. Daniel Correa is joined by influencer, video creator, and writer Jacquelyn Joyce Revere. Jacquelyn, who goes by “MomOfMyMom” on social media, shares her experiences navigating the road to care and support of a loved one with dementia and creating a community for others in similar situations. Dr. Correa is then joined by Dr. Jason Cohen, neurologist and dementia specialist at Montefiore Medical Center and the Albert Einstein College of Medicine. Dr. Cohen discusses dementia diagnoses and what the pathway to finding the right care looks like for families like Jacquelyn’s.

We invite you to participate in our listener survey! By participating in the brief survey, you will have the opportunity to enter your name and email address for a chance to win one of five $100 Amazon gift cards.

Additional Resources

Mom of My Mom

How to Talk to Loved Ones Who Have Dementia

Caregivers Share Tips to Simplify the Holidays and Reduce Stress

Other Brain & Life Episodes on Similar Topics

Leaving a Legacy of Love and Care with Mary Lou Falcone

Journalist, Producer Kitty Eisele’s Honest Recount of Her Time as Caregiver

The ‘Humor and Heartache’ of Caregiving with Filmmaker Michelle Boyaner

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Have a question or want to hear a topic featured on the Brain & Life Podcast?

• Record a voicemail at 612-928-6206
• Email us at BLpodcast@brainandlife.org

Social Media:

Guests: Jacquelyn Revere @momofmymom

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life podcast, Dr. Katy Peters is joined by author, essayist, and speaker who “writes, thinks, and talks about disability” Jessica Slice. Jessica shares about her experiences as a disabled parent, what inspired her to write her books, and what hopes she has for the future. Dr. Peters is then joined by Dr. Svetlana Blitshteyn, Director and Founder of Dysautonomia Clinic and Clinical Associate Professor of Neurology at the University at Buffalo Jacobs School of Medicine and Biomedical Sciences. Dr. Blitshteyn explains exactly what Ehlers-Danlos, POTS, and Dysautonomia are, how diagnoses are made, and what treatment options look like.

We invite you to participate in our listener survey! By participating in the brief survey, you will have the opportunity to enter your name and email address for a chance to win one of five $100 Amazon gift cards.

Additional Resources

Jessica Slice

Understanding the Mysteries of POTS and Other Autonomic Disorders

A Swimmer Returns to the Pool After Ehlers-Danlos Syndrome Diagnosis

New Research May Help People with Long-Haul COVID-19

Dysautonomia Clinic

Other Brain & Life Episodes on Similar Topics

Understanding Long COVID: What We Know

How Paula Carozzo is Redefining Disability and Advocating for Her Community

How Disability Advocate Wesley Hamilton Became Empowered by Adversity

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

· Record a voicemail at 612-928-6206

Email us at BLpodcast@brainandlife.org

Social Media:

Guests: Jessica Slice @jessicaslice; Dr. Svetlana Blitshtyen @dysclinic

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life podcast, Dr. Daniel Correa is joined by JenVon Cherry, who was diagnosed with epilepsy as a child after a traumatic brain injury (TBI.) JenVon is now an epilepsy advocate who founded Epitome of Epilepsy, a nonprofit organization dedicated to raising awareness and support for individuals affected by epilepsy, particularly within communities of color. Dr. Correa is then joined by Dr. Latanya Agurs, former army neurologist and assistant professor of neurology serving as the Pediatric Neurology Residency Program Director at the Children's Hospital Los Angeles. Dr. Agurs discusses epilepsy and TBI in children, the emotional components of a diagnosis, and resources for caregivers.

We invite you to participate in our listener survey! By participating in the brief survey, you will have the opportunity to enter your name and email address for a chance to win one of five $100 Amazon gift cards.

Additional Resources

Epitome of Epilepsy

This Woman Overcame Tragedy to Educate Communities of Color About Epilepsy

Young Woman Tackles Bullying and Epilepsy

Other Brain & Life Episodes on Similar Topics

Actor Cameron Boyce’s Legacy and Raising Awareness About SUDEP

Tiffany Kairos on Finding Her Voice in Epilepsy Advocacy

Greg Grunberg on Raising Epilepsy Awareness

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

· Record a voicemail at 612-928-6206

· Email us at BLpodcast@brainandlife.org

Social Media:

Guests: JenVon Cherry @epitomeofepilepsy; Dr. Latanya Agurs @chlachildneuro

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life podcast, Dr. Daniel Correa and Dr. Katy Peters answer some of your questions. Then, Dr. Peters is joined by Dr. Rohan Ramakrishna, professor of Neurosurgery at Weill Cornell Medical College and co-founder of an application called Roon. Roon taps into accurate health information, particularly in the areas of ALS, dementia, and brain tumors, and connects patients and caregivers with the doctors and communities they’re looking for. Dr. Ramakrishna explains how this app came to be, who it’s helping, and what’s coming next.

We invite you to participate in our listener survey! By participating in the brief survey, you will have the opportunity to enter your name and email address for a chance to win one of five $100 Amazon gift cards.

Additional Resources

Roon- Answers from Medical Professionals

How to Be Your Own Best Advocate

How Patient Organizations Engage Communities During the Pandemic

Caregivers Share How They Keep Loved Ones Engaged at Home

Other Brain & Life Episodes on this Topic

Building Healthy Digital Habits with Dr. Faye Begeti

Influencer Chan Plante on Coping with Misdiagnosis and Finding a Community

We Are Brave Together with Jessica Patay

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

· Record a voicemail at 612-928-6206

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Social Media:

Guests: Roon App @roon.care

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life podcast, co-host Dr. Daniel Correa is joined by Deborah Vauclare, loving mother of Leo, who is living with a rare genetic neurodegenerative condition called Infantile Neuroaxonal Dystrophy (INAD.) Deborah shares about Leo’s diagnosis and symptoms and how she and her family started an organization called Bisous for Léo with the goal to eradicate INAD and other related neurodegenerative diseases. Dr. Correa is then joined by Dr. Darius Adams, clinical geneticist who works as the Medical Director of the Goryeb Children’s Hospital Genetics and Metabolism Division. Dr. Adams explains what INAD is and what types of research are being conducted to better the lives of patients and their families.

We invite you to participate in our listener survey! By participating in the brief survey, you will have the opportunity to enter your name and email address for a chance to win one of five $100 Amazon gift cards.

Additional Resources

Bisous for Léo

INADCure Foundation

How Parents Advocate for Their Children with Rare Diseases

Advice for Caregivers of People with Rare Diseases

Other Brain & Life Episodes on this Topic

Rare Thoughts on a Rarer Neurologic Condition

Advocacy and Athleticism with the Pittsburgh Steeler’s Cam Heyward

Neurofibromatosis Advocacy and Community Building with the Gilbert Family Foundation

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

· Record a voicemail at 612-928-6206

Email us at BLpodcast@brainandlife.org

Social Media:

Guests: Deborah Vauclare @bisousforleo; Dr. Darius Adams @AtlanticHealth

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life podcast, author Tanita Allen joins Dr. Katy Peters to discuss her experience with Huntington’s Disease and how it inspired her to write her book We Exist. Tanita shares about the rocky diagnosis process, how she manages day-to-day symptoms, and why she was called to share her story in a book. Dr. Peters is then joined by Dr. Katie Moore, Assistant Professor of Neurology and Associate Director of the Neurology Residency Program at Duke University Medical Center. Dr. Moore explains what Huntington’s Disease is, dispels some diagnostic myths, and what patients and caregivers can look forward to in the future.

We invite you to participate in our listener survey! By participating in the brief survey, you will have the opportunity to enter your name and email address for a chance to win one of five $100 Amazon gift cards.

Additional Resources

We Exist by Tanita Allen

What is Huntington’s Disease?

Promising Therapies May Help Huntington’s Disease

Huntington’s Disease Society of America

Other Brain & Life Episodes on this Topic

Rare Thoughts on a Rarer Neurologic Condition

We Are Brave Together with Jessica Patay

Author, Speaker Jackie Stebbins on Rebuilding Her Life After Autoimmune Encephalitis

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

· Record a voicemail at 612-928-6206

· Email us at BLpodcast@brainandlife.org

Social Media:

Guests: Tanita Allen @tanitaallen234; Dr. Katie Moore @dukeneurores

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD