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  • How to Keep Your Relationship Strong

    How to Keep Your Relationship Strong
    2024/09/11
    In this episode, Wes and Kady Shell talk about how they kept their marriage strong and remained close while their daughter Hattie went through an extended ICU stay. Wes and Cady discuss how they learned to let go, meet their spouse where they were, and check in often. One is an early riser and one of them is a night owl. This fact that used to irritate them became key in taking shifts in the ICU. Their differences became their strengths.

    A special thank you to our moderator, Clay Culp, social worker at St. Jude, and our parent caregivers, Wesley and Kady Shell.

    Learn more about Hattie’s diagnosis of anaplastic large cell lymphoma on Together by St. Jude™.

    This episode was recorded on 04/04/2024.
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    21 分
  • Season 2 Trailer

    Season 2 Trailer
    2024/09/05
    We are happy to present season 2 of Caregivers SHARE, a St. Jude podcast. Hear from families and health care providers as they share personal stories and offer support to those caring for a child with a serious illness.

    At St. Jude, we understand the challenges that families face during this difficult time, and we are committed to providing resources to help. Each episode of the podcast focuses on S.H.A.R.E—Supporting, Honoring, Advising, Reflecting, and Encouraging caregivers.

    The first episode of Season 2 will drop on September 12, 2024.

    https://www.stjude.org/care-treatment/patient-families/family-caregiver/caregivers-share-podcast.html
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    1 分
  • Holiday Episode: Finding Joy in the Simple Moments

    Holiday Episode: Finding Joy in the Simple Moments
    2023/12/04
    St. Jude Director of Spiritual Care Services Mark Brown talks with caregiver Nikole Sullivan. Listeners will learn how her family managed the holidays with a child in the hospital, created new memories, and embraced simple joys together. Nikole shares how she let go of the pressure that comes with the holiday season and navigated being apart from family members.

    A special thank you to Mark Brown and our parent caregiver Nikole Sullivan.
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    15 分
  • Episode 7: Friends, Relationships, and Mental Health

    Episode 7: Friends, Relationships, and Mental Health
    2023/10/18
    The transition off therapy can be socially and psychosocially challenging. Caregivers can have feelings of release and relief, but they can also be confused and overwhelmed. How can you take care of your mental health while ensuring the health of your child? LaChaka and Darick explore returning to work, managing finances, asking for help, and navigating strained relationships. They emphasize the importance of giving back by helping others with children who have serious illnesses. A special thank you to Emily Browne, Transition Oncology Program Director at St. Jude, and our parent caregivers LaChaka Davis and Darick Hemphill.
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    37 分
  • Episode 6: Going Back to School

    Episode 6: Going Back to School
    2023/10/04
    When your child transitions off therapy, how do you know when to send them back to school? Emily, Darick, and LaChaka discuss how to confidently make that decision, as well as what accommodations might be needed, such as IEPs (Individualized Education Plans) or 504 plans. They speak about the importance of communicating openly with the care team, child life specialists, social workers, and school administrators. A special thank you to Emily Browne, Transition Oncology Program Director at St. Jude, and our parent caregivers LaChaka Davis and Darick Hemphill.
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    28 分
  • Episode 5: Back to the Local Care Team

    Episode 5: Back to the Local Care Team
    2023/09/20
    The transition from a hospital care team to a local care team comes with its challenges. LaChaka and Darick map out the medical journey each of them took with their children’s treatment. LaChaka outlines how she kept her home pediatrician in the loop so that the transition went smoothly. Both caregivers offer tips on organizing medical records and teaching a child to take an active role in their own care. A special thank you to Emily Browne, Transition Oncology Program Director at St. Jude, and our parent caregivers LaChaka Davis and Darick Hemphill.
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    26 分
  • Episode 4: The Emotions of Transitioning Off Therapy

    Episode 4: The Emotions of Transitioning Off Therapy
    2023/09/07
    When it’s time to transition off therapy, what happens next? While it might seem like an exciting time, the transition off therapy can come with anxiety and fear. Parents LaChaka and Darick share how they handled the emotional aspect of leaving the safety net of the hospital. They talk about the time required to process the experience and how they’ve been humbled by it. LaChaka and Darick reflect on hard emotions like survivor’s guilt. They also explain how creating a support net with other families helped them get through. A special thank you to Emily Browne, Transition Oncology Program Director at St. Jude, and our parent caregivers LaChaka Davis and Darick Hemphill.
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    30 分
  • Episode 3: Seeking Help and Support

    Episode 3: Seeking Help and Support
    2023/08/24
    Paula and Jason explore ways to find support during treatment, whether from the medical team, social workers, or others. They share the importance of advocating for yourself and your child and how important it is to speak up when you know something is not right. Jason and Paula explain how they responded to unsolicited medical advice during treatment, and when to ask for help from someone outside the care team. They point to self-care, connecting with patient families, and living in the moment as tools for making it through. A special thank you to our moderator, Erica Sirrine, Social Work Director at St. Jude, and our parent caregivers, Paula Elsener and Jason Winkle.
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    28 分