Empowered EDS

著者: Lauren Prince and Jason Cole
  • サマリー

  • Empowered EDS: Your Path to Living Well with Ehlers-Danlos Syndrome and Chronic Illness For those of you living with Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD), and other chronic health conditions or supporting someone who does, you know it’s more than just a diagnosis—it’s a journey. Hosted by Lauren Prince, MSW, FDN-P, and Jason Cole, DPT, founders of Connective Wellness, Empowered EDS is here to provide compassionate, expert guidance for managing EDS symptoms and the complex realities of living with a connective tissue disorder. Lauren intimately understands the personal challenges of EDS, having spent decades navigating symptoms without answers and struggling to understand her own body. Jason, a specialist in hypermobility and EDS care, brings deep professional expertise and a passion for helping patients better understand how to care for themselves. Together, they blend personal experience with in-depth training and evidence-based insights to offer you a new perspective on living well with EDS! Each episode of Empowered EDS explores holistic, sustainable approaches to chronic illness, from lifestyle medicine and pain management to mental health support and community-building. We’ll cover topics like finding the right EDS treatment options, coping with chronic pain and fatigue, understanding the EDS diagnosis process, and creating a personalized path to resilience. Expect to hear from medical experts, community members, and advocates who share tips, strategies, and heartfelt stories for thriving with EDS. Empowered EDS isn’t just about managing symptoms—it’s about empowering you to take control of your health and connect with others who understand. Join us on this journey toward greater well-being, because no one should have to face EDS alone. Subscribe to Empowered EDS for actionable insights, uplifting stories, and a supportive community dedicated to helping you live your best life with EDS!
    2024
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あらすじ・解説

Empowered EDS: Your Path to Living Well with Ehlers-Danlos Syndrome and Chronic Illness For those of you living with Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD), and other chronic health conditions or supporting someone who does, you know it’s more than just a diagnosis—it’s a journey. Hosted by Lauren Prince, MSW, FDN-P, and Jason Cole, DPT, founders of Connective Wellness, Empowered EDS is here to provide compassionate, expert guidance for managing EDS symptoms and the complex realities of living with a connective tissue disorder. Lauren intimately understands the personal challenges of EDS, having spent decades navigating symptoms without answers and struggling to understand her own body. Jason, a specialist in hypermobility and EDS care, brings deep professional expertise and a passion for helping patients better understand how to care for themselves. Together, they blend personal experience with in-depth training and evidence-based insights to offer you a new perspective on living well with EDS! Each episode of Empowered EDS explores holistic, sustainable approaches to chronic illness, from lifestyle medicine and pain management to mental health support and community-building. We’ll cover topics like finding the right EDS treatment options, coping with chronic pain and fatigue, understanding the EDS diagnosis process, and creating a personalized path to resilience. Expect to hear from medical experts, community members, and advocates who share tips, strategies, and heartfelt stories for thriving with EDS. Empowered EDS isn’t just about managing symptoms—it’s about empowering you to take control of your health and connect with others who understand. Join us on this journey toward greater well-being, because no one should have to face EDS alone. Subscribe to Empowered EDS for actionable insights, uplifting stories, and a supportive community dedicated to helping you live your best life with EDS!
2024
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  • Physical Activity for Chronic Illness Management
    2025/03/04

    Managing Ehlers-Danlos Syndrome (EDS) and other chronic conditions comes with unique challenges, especially when it comes to staying active while avoiding pain, joint instability, and fatigue. But movement is essential—it strengthens muscles to stabilize joints, improves circulation, and boosts overall well-being.

    In this episode of Empowered EDS, Lauren and Jason, break down the role of physical activity in chronic illness management, offering practical, evidence-based strategies for incorporating safe, effective movement into daily life. Whether you're dealing with limited mobility, chronic pain, or fatigue, this episode provides adaptable exercise recommendations that work with your body, not against it.

    Show Notes:

    Physical activity is an essential part of managing chronic conditions like Ehlers-Danlos Syndrome (EDS), but for many, movement can feel overwhelming due to chronic pain, joint instability, and fatigue. In this episode of Empowered EDS, Lauren and Jason, explore how to incorporate movement in a way that supports, rather than stresses, the body.

    The discussion explores the importance of finding pain-free movement, the mental health benefits of staying active, and how to integrate exercise with other lifestyle pillars like nutrition and sleep. We also highlight the role of proprioception in reducing dislocations and improving stability, and share practical strategies for adapting movement to different ability levels.

    📌 What You’ll Learn in This Episode:
    ✔️ Why movement matters for chronic illness management
    ✔️ How to find safe, pain-free movement that supports joint stability
    ✔️ The mental health benefits of physical activity for EDS
    ✔️ Proprioception—what it is and how it helps prevent dislocations
    ✔️ How to adapt movement routines during flare-ups without losing progress
    ✔️ The importance of an individualized approach—why tailored exercise programs work best
    ✔️ How to create simple, sustainable movement habits that fit into daily life

    Key Takeaways:

    Physical activity is essential for managing chronic conditions, but it must be adapted to the individual.
    Finding pain-free movement is crucial—never push through pain.
    Gentle engagement is still beneficial, even during flare-ups.
    Mental health improves with regular physical activity.
    Movement works best when integrated with nutrition, sleep, and stress management.
    Proprioception training helps improve body awareness and prevent dislocations.
    Small movements make a big difference—starting simple increases long-term consistency.
    Adapting movement routines during flare-ups helps maintain progress without causing setbacks.

    Chapters & Timestamps:

    🔹 00:00 – The Importance of Physical Activity in Chronic Illness Management
    🔹 07:51 – The Mental Health Benefits of Movement
    🔹 11:34 – Understanding Proprioception & Its Role in EDS Management
    🔹 17:22 – How Exercise Can Help Manage Dislocations & Subluxations
    🔹 20:18 – Individualized Assessment & Tailored Movement Plans
    🔹 23:34 – Creating Sustainable Routines for Physical Activity
    🔹 27:50 – Adapting Movement During Flare-Ups
    🔹 32:33 – Final Thoughts & Encouragement to Start Small

    Sound Bites:

    🎙️ "Never push through pain."
    🎙️ "Keep it simple."
    🎙️ "Try something small this week."

    Join the Conversation!

    🔔 Next Episode Preview:
    Next week, we dive into nutrition for EDS, discussing how the right foods can support connective tissue health and inflammation management. Don’t miss it!

    📢 If you found this episode valuable, please subscribe, leave a review, and share it with someone who needs this information!

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    33 分
  • The Six Pillars of Lifestyle Medicine – A Holistic Approach to Managing EDS
    2025/02/27

    Did you know that small, daily lifestyle changes can have a profound impact on managing chronic conditions like Ehlers-Danlos Syndrome (EDS)?

    In this episode of Empowered EDS, Lauren Prince, MSW, FDN-P, explores Lifestyle Medicine—an evidence-based approach that prioritizes holistic, long-term health strategies over symptom management alone. She breaks down the Six Pillars of Lifestyle Medicine, explaining how nutrition, movement, sleep, stress management, avoiding risky substances, and social connection can help EDS patients feel stronger, more resilient, and more in control of their health.

    Lauren shares personal insights and real-world applications of these pillars, offering practical strategies for those looking to improve their well-being despite the challenges of a chronic condition.

    📌 What You’ll Learn in This Episode:
    ✔️ What Lifestyle Medicine is and how it differs from traditional medical approaches
    ✔️ How anti-inflammatory nutrition supports connective tissue and reduces symptoms
    ✔️ The role of low-impact, strength-focused movement in pain management
    ✔️ Why restorative sleep is a game-changer for chronic illness
    ✔️ How stress and inflammation are connected—and simple techniques to manage them
    ✔️ The impact of social connection on mental and physical health
    ✔️ Why avoiding risky substances (like alcohol, tobacco, and certain medications) is crucial for EDS management

    Key Takeaways:

    ✅ Lifestyle Medicine is a science-backed, whole-person approach to chronic illness management.
    ✅ The Six Pillars of Lifestyle Medicine provide a powerful framework for improving health and quality of life with EDS.
    ✅ Nutrition plays a foundational role in reducing inflammation and supporting connective tissue.
    ✅ Movement matters, but it must be tailored to each individual’s needs—gentle, low-impact, and designed for EDS-friendly strength-building.
    ✅ Restorative sleep is essential for healing and managing fatigue.
    ✅ Stress management techniques (like mindfulness and breathwork) can dramatically reduce symptom flares.
    ✅ Avoiding harmful substances (including certain medications) can prevent worsening symptoms.
    ✅ Community and connection play a huge role in emotional and physical resilience.
    ✅ Small, sustainable changes lead to significant long-term health benefits.
    ✅ Understanding your individual triggers is key to effective EDS management.

    Chapters & Timestamps:

    🔹 00:00 – Introduction to Empowered EDS
    🔹 00:25 – Understanding Lifestyle Medicine & Why It Matters
    🔹 05:45 – The Importance of Physical Activity in EDS Management
    🔹 17:12 – Nutrition’s Role in Connective Tissue Health
    🔹 25:01 – How Nutrition Impacts Inflammation & Pain
    🔹 27:19 – Why Restorative Sleep is Essential for Healing
    🔹 33:11 – Stress Management Techniques to Reduce Symptoms
    🔹 38:14 – Avoiding Risky Substances & Their Impact on Chronic Illness
    🔹 41:51 – The Power of Social Connection & Emotional Well-Being
    🔹 45:53 – Final Thoughts & Next Steps

    Sound Bites:

    🎙️ "The gut is your core."
    🎙️ "You can't just eat a salad."
    🎙️ "Sleep is a form of torture."

    Join the Conversation!

    🔔 Don't Miss Future Episodes!
    Next week, we’re diving deep into nutrition for EDS, exploring how specific nutrients support connective tissue health and reduce inflammation. Don’t miss it!

    📢 If you found this episode valuable, please subscribe, leave a review, and share it with someone who needs this information!

    Links:

    American College of Lifestyle Medicine

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    46 分

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