• Episode 5: Ehlers-Danlos Syndrome, Nthabeleng Ramoeli story

  • 2021/11/12
  • 再生時間： 27 分
  • ポッドキャスト

Episode 5: Ehlers-Danlos Syndrome, Nthabeleng Ramoeli story

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  • サマリー

  • Ehlers-Danlos Syndrome is a genetic connective tissue disorder.  Symptoms may be noticeable as early as after birth or during early childhood.  These disorders usually occur due to a gene mutation resulting in defects in the processing or structure of collagen.  Our friend Nthabeleng Ramoeli, CEO of RARE Disease Lesotho association from Africa joins us to share her story with EDS.  

    https://www.facebook.com/RDLAngo/

    #raredisease #Ehlers-DanlosSyndrome #invisibleme #podcast
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あらすじ・解説

Ehlers-Danlos Syndrome is a genetic connective tissue disorder.  Symptoms may be noticeable as early as after birth or during early childhood.  These disorders usually occur due to a gene mutation resulting in defects in the processing or structure of collagen.  Our friend Nthabeleng Ramoeli, CEO of RARE Disease Lesotho association from Africa joins us to share her story with EDS.  

https://www.facebook.com/RDLAngo/

#raredisease #Ehlers-DanlosSyndrome #invisibleme #podcast
続きを読む 一部表示

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