I'm Aware That I'm Rare: the phaware® podcast

著者： phaware global association
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  • サマリー

  • I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.global
    Copyright 2021 phaware global association. All Rights Reserved.
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  • Episode 486 - Scott E. Olitsky, MD

    Episode 486 - Scott E. Olitsky, MD
    2024/09/16

    In this episode, Dr. Scott Olitsky, the Global Center of Excellence Outreach Director for Cure HHT, discusses hereditary hemorrhagic telangiectasia (HHT), a genetic disease characterized by abnormal blood vessel development. HHT can cause bleeding in various parts of the body, with nosebleeds being the most common symptom. In some cases, HHT can lead to the development of pulmonary arterial hypertension (PAH). Medications that dilate blood vessels can worsen bleeding in HHT patients. Dr. Olitsky shares his personal connection to HHT and PAH and highlights the efforts of Cure HHT to improve diagnosis and treatment options for patients.

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware
    Engage for a cure:     www.phaware.global/donate #phaware
    Share your story:     info@phaware.com @curehht
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    9 分
  • Episode 485 - Eric Borstein

    Episode 485 - Eric Borstein
    2024/09/09

    Eric Borstein, who lives with pulmonary arterial hypertension, is walking from Los Angeles to San Diego to raise funds and awareness for the benefit of Team PHenomenal Hope.

    On September 21st, 2020, while at home, he collapsed from massive right heart failure and almost died. On September 22nd, 2024, four years after his PH diagnosis, he begin his 120+ mile walk for patients living with pulmonary hypertension.

    Learn more about his journey and this amazing event at WhereIsEB.og.

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware
    Engage for a cure:     www.phaware.global/donate #phaware
    Share your story:     info@phaware.com
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    11 分
  • Episode 484 - Thekla McGinley

    Episode 484 - Thekla McGinley
    2024/09/02

    In this episode, Thekla McGinley, a PAH patient and advocate, shares her journey with pulmonary arterial hypertension (PAH) and the changes she has witnessed in the treatment options and education for medical professionals. She emphasizes the importance of raising awareness and ensuring that patients have access to proper treatment. Thekla also discusses her role as a support group leader and encourages patients to communicate with their doctors to advocate for themselves in order to receive the best care.

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware
    Engage for a cure:     www.phaware.global/donate #phaware
    Share your story:     info@phaware.com
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    10 分

あらすじ・解説

I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.global
Copyright 2021 phaware global association. All Rights Reserved.
身体的病い・疾患 衛生・健康的な生活
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