Living with XLH

著者： XLH Australia Inc.
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  • Living with XLH explores the challenges and issues of navigating through a diagnosis of the rare, life-long condition, X-linked Hypophospatemia (XLH). You'll hear from paediatric and adult XLH specialists, as well as from people living with XLH on their different patient perspectives from children, teenagers and adults, plus their family members.
    © 2024
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あらすじ・解説

Living with XLH explores the challenges and issues of navigating through a diagnosis of the rare, life-long condition, X-linked Hypophospatemia (XLH). You'll hear from paediatric and adult XLH specialists, as well as from people living with XLH on their different patient perspectives from children, teenagers and adults, plus their family members.
© 2024
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エピソード
  • Living with XLH: Experiences from XLH India

    Living with XLH: Experiences from XLH India
    2024/10/21

    This week, XLH Australia President Sandy Bevc and Vice President Naomi Ford are joined by Prakalp Sudhakar who is the founder and chair of XLH India.

    Topics discussed:

    1. XLH journey as a spontaneous case
    2. Living healthy
    3. XLH India

    Links mentioned in this episode:

    • http://xlhaustralia.com
    • http://xlhindia.org

    This podcast is hosted by ZenCast.fm
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    19 分

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