PEP Talks ISPEP

著者: Emma Sutcliffe
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  • PEP Talks from ISPEP The role of a patient engagement professional can be ... lonely, rewarding, frustrating, demanding. All of these things! It is a challenge advocating for people living with chronic, rare, sometimes life-threatening conditions. These short PEP Talks are there for you when you need a boost from a fellow professional. Brought to you by ISPEP -- the professional home for all patient engagement experts.
    Copyright 2024 Emma Sutcliffe
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PEP Talks from ISPEP The role of a patient engagement professional can be ... lonely, rewarding, frustrating, demanding. All of these things! It is a challenge advocating for people living with chronic, rare, sometimes life-threatening conditions. These short PEP Talks are there for you when you need a boost from a fellow professional. Brought to you by ISPEP -- the professional home for all patient engagement experts.
Copyright 2024 Emma Sutcliffe
エピソード
  • Strive4Five with Steve: Core skill sets for honest and empathic patient advocacy
    2024/11/06

    In this episode of Pep Talks, Emma interviews Steve Clark, a cancer survivor and patient advocate. Steve shares his journey from diagnosis to founding Strive for Five, a non-profit focused on providing hope to others with cancer. He discusses the importance of effective communication between patients and doctors, the nocebo effect, and the bio-psychosocial model of care. Steve emphasizes the power of positivity and the importance of support systems, including therapy and pets.

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    21 分
  • Fighting for patients in everyway: Stacy Hurt is out there, every day, making patient engagement matter.
    2024/10/25

    Stacey Hurt, Chief Patient Officer at Parexel, shares her journey and role in a PEP Talk podcast sponsored by Medscape. As a stage four colorectal cancer survivor and caregiver to her son with profound disabilities, Stacey brings authenticity and a unique perspective to her position. She emphasizes the importance of patient engagement in clinical trials, advocating for the inclusion of patient voices to improve trial design and outcomes.

    Stacey discusses the challenges and strategies in defending the business value of patient engagement, highlighting the significant cost savings and efficiency gains. She also reflects on her personal experiences and the impact of her work on the industry, aiming to inspire and guide others in patient advocacy. Stacey's story underscores the transformative potential of patient-driven solutions in clinical research.

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    20 分
  • From scientist to strategist: Dr Victoria Harvey-Jones is on a mission to humanise healthcare
    2024/10/11

    In this PEP Talk we hear from multi academic award winning cancer researcher, Victoria Harvey-Jones, about the three 'Rs' that we must address to improve communications between doctors and patients; and why the white paper she co-authored with other leaders is a game changer to humanise healthcare communications.

    • Patient centricity to Integration: enhancing Cancer outcomes - To drive improvements in patient outcomes, it's vital that we integrate the lived experiences of people living with diseases like cancer into medical education. Read more in Medscape’s white paper, "Patient Centricity to Integration: Enhancing Cancer Outcomes," which won an Award of Excellence at APEX, Awards for Publication Excellence 2024!


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    14 分

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