In this episode of the Post-Exertional Mayonnaise podcast, host Daniel Moore speaks with Merel van der Noop, the music director of the Long COVID Choir and Long COVID Kids Choir. They discuss Merel's personal journey with Long COVID, the challenges of navigating healthcare, and the transformative power of music in coping with chronic illness. The conversation highlights the importance of community, support, and creative expression in the healing process, as well as the unique experiences of children with Long COVID. Merel shares insights into the formation of the Long COVID Choir, the activities they engage in, and the significance of fostering connections among participants. The choir is open to anyone with long term chronic conditions. Long covid choir: https://www.longcovid.org/support/long-covid-choir A home within our heart recording: https://youtu.be/xzyLJAyL8Fs?si=2Q6feGtn4IMFLvcd Contact us: www.pempod.com Pempodcast23@gmail.com

In this episode of Post-Exertional Mayonnaise, hosts Dov and Daniel explore the themes of social isolation and sensory overload experienced by those living with ME and chronic illness. They discuss the impact of these conditions on social lives, the challenges of navigating social interactions, and the absurdity of medical care. The conversation highlights the emotional toll of social deconditioning, the importance of community, and the joy found in mundane social interactions. Through humour and shared experiences, they reflect on the complexities of maintaining connections in a world that often feels distant and overwhelming.#chronicillness #myalgicencephalomyelitis #socialisolation Contact us: pempodcast23@gmail.com https://www.pempod.com/

In this episode of the Post-Exertional Mayonnaise podcast, Daniel Moore speaks with Lisanne Jacobs, a songwriter and chronic illness advocate, about her journey with ME and the role of creativity in coping with chronic illness. Lisanne shares her personal story, including her diagnosis, struggles with healthcare, and the importance of music as a form of expression and healing. They discuss the challenges of navigating the healthcare system, the impact of chronic illness on daily life, and the hope that can be found in small improvements. Lisanne also reflects on her songwriting process and the influence of other artists on her work, emphasising the importance of connection and representation in the chronic illness community. Homeostasis lyrics: It gets harder every fall When it rains through bedroom walls, it pours ‘til doctor’s don’t care anymore You fake the art of getting by Weary hearts, blurry sights set on elusive finish lines We’re a long, long way from homeostasis There’s no time to waste, but we’re caught in a loop Oh we long for a taste of something good Crossing off each day we’ve made it through And it’s ever so still in the waiting room Hmmmmm “When you get stuck, there’s a window” says the lucky one on the other side (But) all we do is try “Where there’s a maze, there’s an exit” Oh it’s a race against bitter bones to find it before all of our youth runs dry We’re a long, long way from homeostasis When all else fails, time could move us through When the green turns grey, oh we’ll get creative Painting old vases ‘til we’ve paid our dues And it’s ever so dark but we could make it through one more year in this waiting Roooooooom Here, take my hand, let’s err on the side of hope My dear, take the stand and swear that you won’t let go Oh the least we have is not being (the least bit) alone... ...while breathing the art of getting by Weary hearts, blurry sights set on elusive finish lines We’re a long, long way from homeostasis When everything aches, love could move us through When the green turns grey, oh we’ll get creative I’ll sing your praises ’til you’re singing too And it’s ever so dull but we could paint it blue Every inch of this waiting room Oh it’s ever so still but love will lead us through one more day in this waiting room Lisanne's music can be found on Instagram: https://www.instagram.com/lisannejacobsmusic?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw== Daniel's track: quit button https://youtu.be/0w31Z4bFqQ0?si=UWREvOxtCf0X_NWz Turnto link: https://www.turnto.ai/?utm_source=link&utm_medium=share&utm_campaign=pempodcast Contact us: https://www.pempod.com/ pempodcast23@gmail.com