• The (Not So) Secret Life of Living with a Neuromuscular Disorder

  • 2022/04/20
  • 再生時間: 44 分
  • ポッドキャスト

The (Not So) Secret Life of Living with a Neuromuscular Disorder

  • サマリー

  • Did you know there are over 160 different types of neuromuscular disorders? You may have heard the Singeris Family's story with neuromuscular disorders (NMD), but  one story does not paint the same picture for everyone else.

    Some neuromuscular disorders are genetic; others autoimmune. Some are congenital, while others are diagnosed later into adulthood. No two neuromuscular stories are the same, and in this episode, Jalee Pelissier – colleague, friend, patient, advocate – takes the mic to share her journey with Charcot-Marie-Tooth disease.  Her vulnerability, ambition, and personal anecdotes will leave you both inspired and educated.


    Support the Walk 4 Muscular Dystrophy:

    • Northern Muscle Movers (Jalee's Team)
    • Team Willy White Shoes (Steff's Team)
    • ON & Nunavut Walk

    To learn more about neuromuscular disorders and Muscular Dystrophy Canada visit: https://muscle.ca/discover-md/what-is-muscular-dystrophy/


    Follow and connect with Steff  or catch up on the blog sweatwithsteff.com

    **Although immersed in the the health & wellness industries, all content on this podcast does not constitute as medical advice. Always refer to your physician and/or allied health professionals for decision making on your specific needs and circumstances.  

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あらすじ・解説

Did you know there are over 160 different types of neuromuscular disorders? You may have heard the Singeris Family's story with neuromuscular disorders (NMD), but  one story does not paint the same picture for everyone else.

Some neuromuscular disorders are genetic; others autoimmune. Some are congenital, while others are diagnosed later into adulthood. No two neuromuscular stories are the same, and in this episode, Jalee Pelissier – colleague, friend, patient, advocate – takes the mic to share her journey with Charcot-Marie-Tooth disease.  Her vulnerability, ambition, and personal anecdotes will leave you both inspired and educated.


Support the Walk 4 Muscular Dystrophy:

  • Northern Muscle Movers (Jalee's Team)
  • Team Willy White Shoes (Steff's Team)
  • ON & Nunavut Walk

To learn more about neuromuscular disorders and Muscular Dystrophy Canada visit: https://muscle.ca/discover-md/what-is-muscular-dystrophy/


Follow and connect with Steff  or catch up on the blog sweatwithsteff.com

**Although immersed in the the health & wellness industries, all content on this podcast does not constitute as medical advice. Always refer to your physician and/or allied health professionals for decision making on your specific needs and circumstances.  

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