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サマリー
あらすじ・解説
This week Bonni returns to the mic after a long hiatus and much self-reflection. In honor of May being EDS Awareness Month, she sits down with Samantha Brechner to talk about the raw and real ways that having Ehlers-Danlos Syndrome has affected each of their lives.
You’ll hear the following and more:
- How having EDS has changed our lives
- The long journey to diagnosis
- Things that help us improve our quality of life
- What we wish more people understood about EDS
- Our stages of denial and trying everything to cure ourselves
- The most challenging symptoms
- Dealing with the darkness of our most challenging times
- The importance of community
#EhlersDanlosAwareness #MedicalPTSD #Gaslighting #Dysautonomia #MastCellActivationDisorder #SmallFiberPeripheralNeuropathy #InvisibleIllness #Disability #YouDontLookSick #EhlersDanlosSyndrome #ADHD #Dyspraxia #Subluxations #LongCovid #Anxiety #Depression #ToxicPositivity #ChronicIllness #ChronicPain
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