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  • The Farias - Dystonia Recovery Program
    2024/10/24

    In this episode, we do a deep dive into the Farias Dystonia Recovery Program. Benefits, Drawbacks, Cost, etc.

    The Dystonia Recovery Program (DRP) is an online platform tailored for individuals with various forms of Dystonia, including Cervical Dystonia, Hand Dystonia, Leg Dystonia, Blepharospasm, Oromandibular Dystonia, Facial Dystonia, Spasmodic Dysphonia, and Musicians’ Focal Dystonia. Developed by Dr. Joaquin Farias, this program integrates a multifaceted approach to recovery.

    Note to listeners - we do not endorse, nor are affiliated with this program. We are merely aiming to educate, share and give hope to those with this affliction. Recovery is possible.

    The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.

    You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com

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    32 分
  • Focal Dystonia in Cyclists
    2024/09/18

    In this episode we talk with cyclist Chris Melia about her presentation of Focal Dystonia. Chris is a former runner and now a cyclist who recognized the signs of dystonia in 2021. She relates to us how it presented and how she detected it. Since that time, she has made much progress and this episode details what she has done to move forward. Much of what Chris shares is less about the physical and more about the mental and emotional. As always thanks for listening.

    The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.

    You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com

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    40 分
  • Episode 2: What we've tried, what is working, what didn't
    2024/08/07

    In this episode, JoJo and Julie review all of the treatments tired for dystonia, explaining what seems to be working and what didn't work. It's a long list and NOT comprehensive by any means. Keep in mind that this is based on our own needs, tolerances and preferences - and may not work for you. In addition, some things that did not work for us may be working for you. We are all unique in our journeys through this. By all means stay hopeful that change is possible with persistence and a curious outlook.

    The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.

    You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com

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    48 分
  • Episode 1 - Intentions, Introductions and Why We are Here
    2024/07/09

    In this episode, JoJo and Julie describe our intentions for this show and give background information on what is know as Runner's Dystonia, how it presents and why it is so hard to diagnose, much less understand. We briefly share our own personal stories and journeys from initial days of knowing something was "wrong" and how we are leveraging our newly discovered resilience.

    Our intention is to spread the word, educate and share what we understand about Runner's Dystonia.

    The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.

    You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com

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    45 分