• Episode 45: Sierra Phillips - Warsaw Breakage Syndrome

  • 2024/09/11
  • 再生時間： 41 分
  • ポッドキャスト

Episode 45: Sierra Phillips - Warsaw Breakage Syndrome

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  • In this emotional episode of the podcast, Sierra speaks about her journey as a mother to Jack, who was diagnosed with the ultra-rare Warsaw Breakage Syndrome. She opens up about the complexities of Jack’s medical challenges, including a congenital heart defect, microcephaly, and severe growth restriction, all of which were discovered early in her pregnancy. Sierra emphasizes the importance of trusting her instincts and being Jack’s fiercest advocate in a healthcare system that often left her feeling overwhelmed. She turned her experience into action by creating Librarey, sharing what she learned to help parents in similar situations.

    Sierra chose the song Make You Feel My Love by Bob Dylan.
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あらすじ・解説

In this emotional episode of the podcast, Sierra speaks about her journey as a mother to Jack, who was diagnosed with the ultra-rare Warsaw Breakage Syndrome. She opens up about the complexities of Jack’s medical challenges, including a congenital heart defect, microcephaly, and severe growth restriction, all of which were discovered early in her pregnancy. Sierra emphasizes the importance of trusting her instincts and being Jack’s fiercest advocate in a healthcare system that often left her feeling overwhelmed. She turned her experience into action by creating Librarey, sharing what she learned to help parents in similar situations.

Sierra chose the song Make You Feel My Love by Bob Dylan.
身体的病い・疾患 衛生・健康的な生活
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