• Gut Punched: Alzheimer’s & Caregivers

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Gut Punched: Alzheimer’s & Caregivers

著者: Podcast Playground
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  • Navigating the insidious illness of Alzheimer’s is something nobody asks for. The disease sneaks up on you and your loved one, and it feels like you’ve been sucker-punched in the gut when you get the diagnosis from a doctor. So many things race through your mind: why us? What do we do? We worked so hard to get to this point in life. We just moved here after we both worked for 30 years, sold our house up North, and retired to Florida to enjoy our “golden years”. It’s not fair! Who’s going to take care of her/him? I don’t know a thing about this illness. She’s always done the cooking; I don’t even know how to boil water. He's always taken care of me and everything else like Finances. I don’t even drive! And it goes on and on. Facing this disease will bring you to your knees. Once you get over the initial shock (GUT PUNCHED), the questions and fears take hold. Where do we turn for help? Who do I call? What do I do? How do you take care of someone with Alzheimer's? Are there support groups? And questions like these just keep coming. I am a caregiver. I wasn’t before. Well, not this kind of caregiver. My wife was officially diagnosed in January of 2018. I had a sneaking suspicion that she might have something like this about 2 years earlier. So, when I brought it to my Neurologist, he sent us to a very nice Psychologist who specializes in testing patients to determine more accurately what is going on. It was a question-and-answer session, followed by a very detailed testing procedure that usually takes 3 or more hours. The patient has to complete the test comprising of questions, simple actions, and memory tests, then give them a couple of numbers or words then move on, going back to the numbers or words a short time later.

    So moving forward, I asked all the same questions as mentioned earlier. What are my options? So I “sucked it up”-Manned up so to speak. It's part of the deal for better or worse, right? So began my quest for information on support groups, doctors, anything I could get my hands on. It's been 6 years, and I am still looking for everything and anything that will help me crawl through this unchartered path to enlightenment. I was very fortunate to live in a city that has numerous resources to tap into. Most importantly, it's a place named after someone who suffered from Alzheimer’s. His wife provided the money to start the Alvin Dubin Center: The Dubin Center for short. Their mission is to achieve caregiver health, strength, and resilience by providing education, information, hope, and compassion. And boy do they. I leaned on them for everything I could find. Took all kinds of classes to learn what I needed to do to be the caregiver I have to be. Their caregiver class took about 6 weeks. The material we learned from, and the instructors, were top-notch. I still go back to the notes I took, and the books we used: both as refreshers and inspiration. Hopefully, no matter where you are listening to this, there will be a place like the Dubin Center. If not, don’t despair. The info is out there. That’s what this podcast is about. We’d like to share our resources, our experiences, our heartbreak, and our little victories. From time to time, we’d like to bring in Physicians, Nurses, Experts, and people like you and me, who are going through this disease with our loved ones who are willing to share their journey. The first thing that really stuck with me, and hopefully it will be with you. If you are a caregiver, you must first take care of yourself. Because this is not a sprint, but a marathon. And if you are run down, get sick, or worse.... Who’s going to take care of your spouse, mother, father, or child? Think about that for a few seconds. It’s you, the Caregiver. It’s me the Caregiver. That’s why we’re here. Gut Punched: Alzheimer’s & Caregivers! Thanks for joining us...now let's get going.

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あらすじ・解説

Navigating the insidious illness of Alzheimer’s is something nobody asks for. The disease sneaks up on you and your loved one, and it feels like you’ve been sucker-punched in the gut when you get the diagnosis from a doctor. So many things race through your mind: why us? What do we do? We worked so hard to get to this point in life. We just moved here after we both worked for 30 years, sold our house up North, and retired to Florida to enjoy our “golden years”. It’s not fair! Who’s going to take care of her/him? I don’t know a thing about this illness. She’s always done the cooking; I don’t even know how to boil water. He's always taken care of me and everything else like Finances. I don’t even drive! And it goes on and on. Facing this disease will bring you to your knees. Once you get over the initial shock (GUT PUNCHED), the questions and fears take hold. Where do we turn for help? Who do I call? What do I do? How do you take care of someone with Alzheimer's? Are there support groups? And questions like these just keep coming. I am a caregiver. I wasn’t before. Well, not this kind of caregiver. My wife was officially diagnosed in January of 2018. I had a sneaking suspicion that she might have something like this about 2 years earlier. So, when I brought it to my Neurologist, he sent us to a very nice Psychologist who specializes in testing patients to determine more accurately what is going on. It was a question-and-answer session, followed by a very detailed testing procedure that usually takes 3 or more hours. The patient has to complete the test comprising of questions, simple actions, and memory tests, then give them a couple of numbers or words then move on, going back to the numbers or words a short time later.

So moving forward, I asked all the same questions as mentioned earlier. What are my options? So I “sucked it up”-Manned up so to speak. It's part of the deal for better or worse, right? So began my quest for information on support groups, doctors, anything I could get my hands on. It's been 6 years, and I am still looking for everything and anything that will help me crawl through this unchartered path to enlightenment. I was very fortunate to live in a city that has numerous resources to tap into. Most importantly, it's a place named after someone who suffered from Alzheimer’s. His wife provided the money to start the Alvin Dubin Center: The Dubin Center for short. Their mission is to achieve caregiver health, strength, and resilience by providing education, information, hope, and compassion. And boy do they. I leaned on them for everything I could find. Took all kinds of classes to learn what I needed to do to be the caregiver I have to be. Their caregiver class took about 6 weeks. The material we learned from, and the instructors, were top-notch. I still go back to the notes I took, and the books we used: both as refreshers and inspiration. Hopefully, no matter where you are listening to this, there will be a place like the Dubin Center. If not, don’t despair. The info is out there. That’s what this podcast is about. We’d like to share our resources, our experiences, our heartbreak, and our little victories. From time to time, we’d like to bring in Physicians, Nurses, Experts, and people like you and me, who are going through this disease with our loved ones who are willing to share their journey. The first thing that really stuck with me, and hopefully it will be with you. If you are a caregiver, you must first take care of yourself. Because this is not a sprint, but a marathon. And if you are run down, get sick, or worse.... Who’s going to take care of your spouse, mother, father, or child? Think about that for a few seconds. It’s you, the Caregiver. It’s me the Caregiver. That’s why we’re here. Gut Punched: Alzheimer’s & Caregivers! Thanks for joining us...now let's get going.

エピソード
  • Gut Punched: EP 49 Some Whacky Things About Alzheimer’s
    2025/03/31

    In this light-hearted yet informative episode of GutPnched: Alzheimer’s and Caregivers, host Jeff Edwards takes a look at some surprising, sometimes quirky studies about Alzheimer’s, all while reminding caregivers to prioritize their own well-being.

    Jeff kicks things off with a playful nod to the approaching April Fools' Day and dives into some offbeat Alzheimer ’s-related research: Did you know that chewing on wood could improve your memory? Sounds like an April Fools’ prank, but according to a new study, it might be true. The episode also explores brain-boosting foods, highlighting the best nuts and seeds to support cognitive health. Plus, Jeff discusses a promising finding that just 35 minutes of weekly exercise can reduce the risk of dementia.

    But beyond the fun facts, Jeff offers some crucial advice to caregivers:

    1. Take care of yourself

    2. Ask for help – You can’t do it alone.

    3. Make a list of what needs to be done and stick to it.

    As the episode unfolds, Jeff also raises an important point about the flood of sometimes dubious information circulating on social media about Alzheimer’s and caregiving. He emphasizes the importance of checking sources and exercising caution when encountering advice that sounds too good to be true (like some magic cure involving belly rubs and one-legged standing).

    So, whether you’re here for some laughs or looking for real, practical tips, Episode 49 of GutPunched delivers both, with a dose of humor and a reminder to keep your critical thinking sharp.

    Available on GUTPUNCHED.COM, The Podcast Playground, and all major platforms, including Spotify, Pandora, Google, iHeart, Apple, and more. Don't forget to like and subscribe!

    #GUTPUNCHED #ALZHEIMERS #DEMENTIA #CAREGIVERS

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    19 分
  • Gut Punched: Alzheimer’s and Caregivers EP 48 One Year In
    2025/03/24

    In this milestone episode, GutPunched: Alzheimer’s & Caregivers celebrates its first year of navigating the often difficult, sometimes isolating, but always necessary conversations around Alzheimer’s and caregiving. Host Jeff Edwards reflects on the journey that began in March 2024 with a mix of excitement, uncertainty, and a steep learning curve. What started with a bit of trial and error has blossomed into a platform that’s growing steadily, reaching more listeners each week and touching more lives across the country.

    But as Jeff so humbly points out, none of this would have been possible without the incredible support from a network of kind-hearted individuals, organizations, and guests. From the Alzheimer’s Association to The Dubin Center, and of course, the caregivers themselves, each has played a crucial role in making the podcast a beacon of hope and resource for those living with Alzheimer’s and caring for loved ones.

    Throughout this episode, Jeff takes a moment to thank those who’ve contributed to the growth of GutPunched—from the behind-the-scenes support to the guests who graciously shared their stories and expertise. The podcast has never been about “mass appeal” or trendy topics—it’s about something deeper, a cause that affects millions. It's about reaching those who are often invisible, providing them with the tools, support, and knowledge they so desperately need.

    The episode also reflects on the themes covered in past episodes, all centered around the central mission: to ease the caregiver's journey. Whether discussing practical resources, emotional support, or the raw realities of caregiving, GutPunched has been a trusted companion for many. Jeff also revisits a fan-favorite from earlier episodes—a poignant and powerful poem about Alzheimer's, offering a moment of reflection as the podcast continues its mission to not only inform but also to connect.

    As the podcast reaches this significant one-year mark, Jeff’s gratitude is clear. It's a year of growth, learning, and most importantly, giving back. The heartfelt message of this episode is one of appreciation—for listeners, for supporters, and for the caregivers who carry the heaviest burden. The journey continues, but as always, it’s a collective effort, and Jeff is honored to be a part of it.

    Available on GUTPUNCHED.COM, The Podcast Playground, and all major platforms including Spotify, Pandora, Google, iHeart, Apple, and more. Don't forget to like and subscribe!

    #GUTPUNCHED #ALZHEIMERS #DEMENTIA #CAREGIVERS

    Gut Punched: Alzheimer’s and Caregivers

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    23 分
  • Gut Punched: Alzheimer’s and Caregivers EP 47 I Love Music
    2025/03/17

    In this heartfelt episode of GutPunched: Alzheimer’s and Caregivers, host Jeff Edwards reflects on the power of music and its profound impact on those living with Alzheimer's and dementia. As spring approaches and daylight savings time begins, Jeff humorously shares his personal experience of missing the time change this year, only to wake up refreshed, realizing he didn't lose that precious hour of sleep after all.

    Music takes center stage in this episode, as Jeff explores an article discussing how music can soothe depression in dementia patients. He delves into the positive effects that music has on individuals with Alzheimer's disease, offering hope and healing through the power of melody and rhythm. One particularly moving story featured is that of Henry Dyers, a 90-something Alzheimer’s patient who finds joy and connection through the music of Cab Calloway. This story is showcased in the touching video Alive Inside, which Jeff encourages listeners to watch for a heartwarming experience.

    In addition, the episode features a conversation with Molly Phillips, a musician, music educator, and board-certified music therapist. Molly leads The Intermezzo Choir, a group created specifically for individuals with Alzheimer’s and dementia by the Fort Myers Symphonic Masters Singers. She shares insights into the therapeutic power of music and its ability to engage and uplift patients in profound ways.

    As the episode draws to a close, Jeff reflects on the first anniversary of GutPunched: Alzheimer’s and Caregivers, acknowledging the incredible journey of sharing valuable resources and information with listeners and caregivers. Tune in for this moving, music-filled episode that highlights the transformative power of music for those affected by Alzheimer's and dementia.

    Available on GUTPUNCHED.COM, The Podcast Playground, and all major platforms including Spotify, Pandora, Google, iHeart, Apple, and more. Don't forget to like and subscribe!

    #GUTPUNCHED #ALZHEIMERS #DEMENTIA #CAREGIVERS

    Gut Punched: Alzheimer’s and Caregivers

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    32 分

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